Celiac Disease Stories

I was diagnosed with CIDP and Celiac Sprue the end of may 2005. This diagnosis came after nearly 6 months of progressive numbness and weakness in my hands and arms then progressing into my legs and feet.

The diagnosis was polyneuropathy. (if the neuropathy is demylinating its called CIDP)

 I received a 5 day course of IVIG treatments and the University of Kentucky Medical Center. It has been followed up by two months of 5 day courses.  Getting better.

Please see our Celiac Disease Guide

Another lady reports about her symptoms of Celiac disease
I went un-diagnosed! Horrible skin rashes, migraines so bad I was hospitalized a few times, serious bloating, diarrhea constantly, ulcers, horrible mouth sores, oh so tired ALL THE TIME, and at 30 I was told I had the beginnings of osteoporosis! When my kidneys and liver started failing last year (also at the age of 30) my doc finally gave up and said, "I have got no more ideas.

A third lady reports:

Overall bad bloodwork: low everything- LOW- platelets,LOW vit Bs, etc. mouth sores, splitting fingernails

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When B-12, Iron, calcium, vitamin -D are low think Celiac disease.

Things are not getting absorbed, the stools are oily. Stomach and Gas issues.THEN GO FOR A GLUTEN FREE DIET SEE THE DIET SECTION.